MEET THE TRUSTEES
VICS
Founder & Director
Co-Chair, Shooting Star, Writer, Editor, Shining Star
Hey! I'm Vics, I am the Founder and Director of MRKH Stars. I'm on the Superstars, Shooting Stars and Writing teams.
I was diagnosed with MRKH in July 2019, and created MRKH Stars in April 2021. My Journey has been far from easy, there have been many bumps in the road, and I am sure there are many more to come!
But I have made some of my best friends because of MRKH and we help each other through all of those bumps, something I'm so grateful to have. I founded Stars to build on that sense of belonging, community and easy access to help, focusing specifically for those MRKHers who are young and newly diagnosed. Stars will always be here for you, we are always only a message away!
TK
Director
Co-Chair, Shooting Star, Shining Star
Hi I'm TK, I am the Director and a part of the Superstars team! I am a Shooting Star to help MRKH Warriors!
I was diagnosed with MRKH on the 8th of October 2019. When these four little letters changed my life it was the worst thing that ever happened to me. My perfect future had changed and I didn't know what I was going to do. Although it has been tough, there has been an amazing community of people to support and guide me through it. Some days are tough but that's okay. I've learnt to love my MRKH and accept that it is my new adventure.
MIA
Secretary, Friend
Hello! I'm Mia and I run the Friends of MRKH Stars scheme.
I study English at University and I am currently in my second year. I am friends with Vics and have been increasingly interested in her charity (and proud of course!!!!). She gave me the opportunity to run friends/family events and I jumped at the idea. I look forward to supporting such an amazing charity.
MIKE
Treasurer
Hi! I am Mike and I am a Trustee and
Treasurer for Stars.
I'm Vics' dad, she's my eldest of two daughters, and when
she asked me to step in and help out to handle the
financial side of MRKH Stars, of course I said yes. MRKH
was new to our whole family when Vics was diagnosed
almost three years ago, and watching her try to make it
more well-known by sharing her story and setting up
Stars makes me a very proud dad. I'm happy to be a part
of the team and to be helping Vics and her friends on this
journey.
ANNA
Trustee
Hi! I am Anna and I am a trustee for Stars.
I am a mum of 3, Tk is my middle child and only daughter. I had never heard of MRKH when she was diagnosed at age 18, but am proud that she is using her diagnosis to do something so positive and be able to help and educate others. I'm really pleased to be able to help Tk and the rest of the team grow Stars.
CRYSTAL
Second Star
Shooting Star, Writer, Trustee, Shining Star
Hi! I’m Crystal, I’m on the Shooting Stars and Writing teams. I was officially diagnosed with MRKH in June 2021. My journey started in July 2021, the first couple of weeks were mentally and physically draining. I felt overwhelmed with emotions and so alone however I had this constant need to hide my emotions and pretend it was not real. I didn’t want to live this reality or have people constantly hovering over me asking me if I was okay when I was not, I was drowning inside. Eventually through this beautiful process of growth and acceptance, I am now able to embrace all these emotions and struggles. Every day is completely different for me, new emotions, new struggles, new challenges, it is not easy but it is so worth it! I have changed in so many unimaginable ways. I LOVE who I am now, I am PROUD of who I am now and I cannot wait to further this scary yet exhilarating journey of MRKH.
LILY
Writer, Trustee, Shining Star
I have known that I have MRKH since I was 11 years old, but I didn't know it was called MRKH until March of 2021. I researched and discovered that I have type 2 since I was diagnosed with VACTERL association from birth. Because I was so young, I never really processed everything until a little over a year ago. I am very private about MRKH in my personal life, but I'm using this opportunity of being on the writing team to be more open and start my advocacy journey. I love the immediate sisterhood that is formed between these MRKH warriors and I'm eager to be a part of it. My goal with joining this team is to make sure that new MRKH warriors know they're not alone in their battle because they have an army of sisters behind them to support and cheer them on every step of the way.