MEET THE WRITERS
VICS
Founder & Director
Co-Chair, Shooting Star, Writer, Editor, Shining Star
Hey! I'm Vics, I am the Founder and Director of MRKH Stars. I'm on the Superstars, Shooting Stars and Writing teams.
I was diagnosed with MRKH in July 2019, and created MRKH Stars in April 2021. My Journey has been far from easy, there have been many bumps in the road, and I am sure there are many more to come!
But I have made some of my best friends because of MRKH and we help each other through all of those bumps, something I'm so grateful to have. I founded Stars to build on that sense of belonging, community and easy access to help, focusing specifically for those MRKHers who are young and newly diagnosed. Stars will always be here for you, we are always only a message away!
Sofie
Writer
Hello! I'm Sofie, and I'm part of the writing team.I was diagnosed with MRKH almost 5 years ago. Over the years I would always mention that I hadn't gotten my period yet, whenever I went to the doctors for something else. I wasn't taken seriously until right before I turned 18. Finally I had a new doctor who took me seriously and finally I had a diagnosis. Finding out was devastating, but I was also happy to finally know what was going on.This condition has brought a rollercoaster of emotions. I have felt so much grief, but I have grown as a person and made new friends because of it. Us MRKHers have a natural bond, I would love to be able to help someone. I'd love to answer questions and chat. MRKH related or not, good or bad, I'm here for you.I know firsthand that it can help a lot to meet someone who understands what you are going through and not have to explain yourself or any terms. I hope I can be that person for others.
Nicole
Shooting Star, Writer
Hey! I'm Nicole, and I'm a part of the Superstars, Shooting Stars and Writing teams.I was diagnosed with MRKH syndrome when I was 17 years old. Throughout the years I have dealt with many struggles surrounding MRKH, which molded me into the strong woman I am today so I am forever grateful. I have always wanted to use my voice and share my story, because I know how important it is to feel like you are not alone in this journey. My hope is to help other women overcome the struggles they had or may have, which is why I am honoured to be a part of Stars and look forward to sharing with you all.
Crystal
Second Star
Shooting Stars, Writer, Trustee, Shining Star
Hello! I'm Crystal, and I'm a part of the writing team.I was officially diagnosed with MRKH in June 2021. My journey started in July 2021, the first couple weeks were mentally and physically draining. I felt overwhelmed with emotions and so alone however I had this constant need to hide my emotions and pretend it was not real. I din't want to live this reality or have people constantly hovering over me asking me if I was okay when I was not, I was drowning inside. Eventually through this beautiful process of growth and acceptance, I am now able to embrace all these emotions and struggles. Every day is completely different for me, new emotions, new struggles, new challenges, it is not easy but so worth it! I have changed in so many unimaginable ways. I LOVE who I am now, I am PROUD of who I am now and I cannot wait to further this scary yet exhilarating journey of MRKH.
Alexa
Writer
Hello! I'm Alexa and I'm on the writing team! I'm a nurse from Miami, FL. I got diagnosed with MRKH when I was 16 years old. I remember feeling so lost the first few years of my diagnosis, trying to forget it ever happened. As I got older I started to accept MRKH and i have grown a lot because of it. When I found MRKH Stars I thought it would be a great opportunity to get more involved. I am still very private about my MRKH in my personal life. But I want to change that little by little. I think once I start talking about MRKH more, I'm not only helping others but I'm also helping myself. I'm looking forward to sharing my story and helping those who are feeling lost like I once was.
Lily
Writer, Trustee, Shining Star
I have known that I have MRKH since I was 11 years old, but I
didn't know it was called MRKH until March of 2021. I researched
and discovered that I have type 2 since I was diagnosed with
VACTERL association from birth. Because I was so young, I never
really processed everything until a little over a year ago. I am very
private about MRKH in my personal life, but I'm using this
opportunity of being on the writing team to be more open and
start my advocacy journey. I love the immediate sisterhood that is
formed between these MRKH warriors and I'm eager to be a part
of it. My goal with joining this team is to make sure that new
MRKH warriors know they're not alone in their battle because
they have an army of sisters behind them to support and cheer
them on every step of the way.
Madeline
Writer, Shining Star
Hi! I am Madeline and I am part of the writing team! l am a 20-year-old college student at The University of Texas at Austin. There I am majoring in biochemistry and am on the pre-med track. I really enjoy hanging out with my friends, exercising, and being outside! I was diagnosed with MRKH in 2017 and ever since I was diagnosed, I knew that I wanted to speak out about MRKH, but I just didn't know how or where. It took me a while to become more comfortable and begin to talk more openly about everything that my diagnosis entailed. Now, I feel like I am at a point where I have come to terms with all that living with MRKH means. I found MRKH Stars on Instagram and looked more
into the organization. When I realized it was run by young women like myself, I knew that this was the organization for me. I knew that I would be connected to other women who were in similar seasons of their life as I am, and that would promote deeper empathy and understanding for one another.
Jacky
Writer
Hi! I’m Jacky and I am on the writing team. I’m 25 and a self proclaimed medical miracle. I was diagnosed with MRKH type 2 when I was 13, but prior to that at birth I was diagnosed with esophageal atresia, VATER syndrome, and spina bifida. I’ve always know my body was different than everyone else’s and MRKH made it even more so. I’m still learning to accept my MRKH diagnosis which only goes to show it is a lifelong journey. I decided to join the MRKH Stars writing team because writing is a passion of mine, and I’d like to get more involved in advocacy work. I think the sisterhood that’s been created is beautiful and I’m so excited to be a part of that. This is such a wonderful initiative for those newly diagnosed with MRKH, and I’m so grateful for the opportunity to be a part of that!