I was diagnosed at 17. I had an ultrasound, two blood tests, and an MRI. The entire process took about three months.
I went to my regular doctor for pains in my lower right side and she suggested the ultrasound where they couldn't find my uterus. Then I went to an Ob/gyn specialist who did the blood work and an MRI which is where I was officially diagnosed.
The experience was overwhelming for me since it was so short of a time it felt like I had a doctor's appointment every time I turned around. When I was first told I was absolutely crushed because I knew that my dream of becoming a mom the traditional way was absolutely crushed. I was upset and would become very emotional whenever I would see a family in a store or a restaurant. In the days following my diagnosis I was pretty confused and upset. I was so shocked that I laughed and then started bawling my eyes out. I was in denial for a few weeks up until they ran every test possible. I was hurt and really started questioning a lot about myself and my purpose in this world. I think my mom felt responsible for a while and it was difficult for me to see her upset too. She tried her best to make me feel better, but some days were worse than others. I have had positive reactions from everyone I have told so far. In my opinion if you tell someone about your diagnosis and they make you feel bad about it, they are not worth your time and energy. People who truly care about you won’t care if you have MRKH or not. Your diagnosis doesn’t change who you are and who God made you to be, that is the thing that really matters.
One of the ways I coped in the beginning is by listening to things that make me happy; for me that is upbeat Christian music and my favorite podcast the CoJo Show. I listened to both of things constantly and I really believe that music has a special way of instantly lifting my mood. On my bad MRKH days worship music is the first thing that I reach for, I would definitely recommend listening and seeing how it makes you feel. I also read my Bible and that can be very comforting. One of my favorite verses is Psalm 139:14 and it says “I praise you because I am fearfully and wonderfully made; your works are wonderful. I know that full well.” Sometimes hearing something positive and uplifting has the ability to change your entire day! You got this!
I also found MRKH Stars and Beautiful you MRKH which has helped me tremendously to know that I went through this for a reason and I can use my pain to help others going through the same thing and to spread awareness about the syndrome!