WHO ARE WE?
MRKH Stars was founded for all those young and newly diagnosed MRKH warriors out there...
We know that a diagnosis of MRKH is SUPER tough, but we've got you! As a foundation run by young people for young people, we have a variety of support systems available to you and your supporters. From a buddy scheme to our own line of merch, we aim to have something to cater for everyone. Explore our website to learn more about what we do.
Our team is always growing and if you feel you would like to support young people living with MRKH, let us know! There are lots of ways for you to get involved if you are an MRKHer yourself or if you support someone living with the condition. Contact us to discuss your options or have a chat. Remember it’s your journey, but you don’t have to face it alone.
-Vics and Tk
What is MRKH?
MRKH is a congenital medical condition that affects the development of female reproductive organs. During fetal development, the müllerian ducts form into the uterus and vaginal canal. People born with MRKH have an underdeveloped or absent uterus and vaginal canal, which is why it is also commonly called müllerian agenesis. It is estimated that 1 in 4,000-5,000 females have and are diagnosed with this condition.
Meet the Co-Directors
Supporting young people with MRKH since 2021...
MRKH Stars is run by Co-Directors Vics Lane and Tk Kennedy. They are 22 and 23 years old, both have MRKH, and have become best-friends on this journey since connecting through advocacy and started managing Stars together. Over the years they have created a team of now over 50 advocates who volunteer their time at the foundation.
MRKH Stars is dedicated to supporting teenagers diagnosed with MRKH (Mayer-Rokitansky-Küster-Hauser syndrome). We provide a safe space for sharing experiences, resources, and encouragement, empowering young individuals to embrace their journey.
Together, we aim to host a community that understands and uplifts one another, helping each member shine brightly.
Advocacy Teams
We have 4 advocacy teams, all organised by age and each with a team captain and a vice captain. Each team is set regular writing prompts and their responses are shared on our social media sites with the hope that even one response to one prompt can resonate with someone who is in need of support or looking for someone who has had a similar experience. Meet our teams here!
What We Do
Here at MRKH Stars, we offer support in a number of ways! Our site and social media platforms will keep you informed with upcoming events and ways to connect with the MRKH community and support network.
