Welcome to MRKH Stars

Peer support for young and newly diagnosed people with MRKH.

You are not alone. We offer support, advocacy opportunities, and friendships that last a lifetime.

MRKH Stars is run together by Co-Directors Vics and Tk and provides support to young and newly diagnosed people living with MRKH Syndrome. We have a unique approach providing tailor-made support and resources created by young people for young people!

Get Support

Our Story...

Subscribe to MRKH Stars

Vics and Tk

Describe your image

Anna

reunion 2

Vics and Tk

Describe your image

1/12

JUST DIAGNOSED?

Name: MRKH Stars
Address: GB

If you have just found out you have MRKH, you may be feeling overwhelmed, scared, not sure what happens now...

If any of this resonates with you, please know that you are not alone. There is no right way to respond to a new diagnosis like this one, we understand. MRKH Stars is here to walk by your side on whichever stage of the journey you are at.

We hope the resources below are a starting point for you. Please find:

- An accessible page breaking down the diagnosis

- Our registration form to get an MRKH Buddy

- Our Young People's Resource Hub

MRKH for Teens

Get a Buddy

Resource Hub

Home: Welcome

What is MRKH?

MRKH is a congenital medical condition that affects the development of female reproductive organs. During fetal development, the müllerian ducts form into the uterus and vaginal canal. People born with MRKH have an underdeveloped or absent uterus and vaginal canal, which is why it is also commonly called müllerian agenesis. It is estimated that 1 in 4,000-5,000 females have and are diagnosed with this condition.

Learn More

Meet the Co-Directors

Supporting young people with MRKH since 2021...

MRKH Stars is run by Co-Directors Vics Lane and Tk Kennedy. They are 24 years old, both have MRKH, and have become best-friends on this journey since connecting through advocacy and started managing Stars together. Over the years they have created a team of now over 50 advocates who volunteer their time at the foundation.

Meet Vics and Tk

Founder/Co-Director

Vics Lane

Hey! I'm Vics, I'm the Founder and Co-Director of MRKH Stars, I take care of all the administrative work that goes into keeping the foundation alive. I am a Mental Health First Aider, Volunteer Co-Ordinator and have a special interest in supporting young people wanting to start their journey as advocates.

@mrkhstars

Co-Director

Tk Kennedy

Hi! I'm Tk, I'm Co-Director of MRKH Stars. I am the creative brain behind the foundation, I am the merch co-ordinator and also set up our buddy scheme Shooting Stars which connects MRKHers together, giving you support and friendship on your MRKH journey like I have with Vics!

@mrkhstars

MRKH Stars is dedicated to supporting teenagers diagnosed with MRKH (Mayer-Rokitansky-Küster-Hauser syndrome). We provide a safe space for sharing experiences, resources, and encouragement, empowering young individuals to embrace their journey.

Together, we aim to host a community that understands and uplifts one another, helping each member shine brightly.

Join Us!

Advocacy Teams

We have 5 advocacy teams, all organised by age and overseen by Tiffany and Madison, our Advocacy Co-Captains! Each team is set regular writing prompts and their responses are shared on our social media sites with the hope that even one response to one prompt can resonate with someone who is in need of support or looking for someone who has had a similar experience. Meet our teams here!

Protostars

For young and newly diagnosed advocates aged 16-20.

Rising Stars

For advocates aged 21-25.

Comets

For advocates aged 26-39.

att.vNx0qytJYzOXi0Ekc58hhncQeTmKFnHTVZjNxWeppFE.jpg

Diamonds

For advocates aged 40+.

What We Do

Here at MRKH Stars, we offer support in a number of ways! Our site and social media platforms will keep you informed with upcoming events and ways to connect with the MRKH community and support network.

Sharing Our Stories

Every MRKH story is unique and personal, but our voices deserve to be heard, and should not be silenced because of taboos or stigmas. We hope that by giving MRKHers the chance to have a voice and share their story, readers feel less alone, because MRKH should not be tackled alone, and our stories show that you are not alone, ever.

Shooting Stars

The newly diagnosed phase of MRKH is arguably one of the most integral. It's new, it's isolating and it's unbelievably painful. With that in mind, MRKH Stars runs a Shooting Stars scheme whereby one of our team, who has been equipped with skills in order to help you to navigate this stage of life, can be a friend and a part of your support network. To be matched with a Shooting Star, get in touch with us and we can arrange it!

Merch

Co-Director Tk runs all of the merch at MRKH Stars. From products designed to support you with dilator treatment to custom jewellery, she has done it all! Head to our Instagram to view what we have on offer...

Friends of MRKH Stars

Our Secretary Mia created and now coordinates the Friends of MRKH Stars Scheme, which provides support to the parents, partners and supporters of those living with MRKH. Mia has been an incredible support to Vics on her journey and has created a team of other keen supporters who can provide advice to families and friends of those who are newly diagnosed.

Get a Buddy!

Our Shooting Stars Buddy Scheme was created to be there for people with MRKH through peer support!

Our buddies are there to answer your questions, and give you a safe space, they are there on your good days and on your bad and are there to be your friend.

Fill in the form below to get matched with a buddy, you aren't in this alone!

~ Tk x

MRKH Stars Co-Director

Get a Buddy