Variations of MRKH
There are 2 types of MRKH, and Type 2 affects more than reproductive organs.
Have a look below at some of the variations people with MRKH are living with. Are any of these like yours?
Amber
MRKH Type: 2
MRKH has also affected my: heart and kidney. I have a heart murmur and one kidney
Additional Symptoms/Diagnoses:
Since being diagnosed with MRKH, I also have:
- EPI. My pancreas can't digest food and I have to take medication
Something/Someone that supports me:
- my husband. He has been there for me through all of it.
Aysha
MRKH Type: 2
MRKH has also affected my: Kidneys
Additional Symptoms/Diagnoses:
Since being diagnosed with MRKH, I also have:
- Microprolactinoma
- Overactive Bladder Syndrome
- Sleep Apnea
- Post Nasal Drip
- PMOS
I was also born with bilateral hydronephrosis.
Something/Someone that supports me:
- My gynaecologist
- My endocrinologist
- MRKH Sisterhood
- Friends & family-especially my parents.
![10[1].png](https://static.wixstatic.com/media/6b32e7_5701adddc5f342c39d3a69141de9a2f8~mv2.png/v1/crop/x_107,y_0,w_867,h_1080/fill/w_455,h_567,al_c,q_85,usm_0.66_1.00_0.01,enc_avif,quality_auto/10%5B1%5D.png)
Claire
MRKH Type: 2
MRKH has also affected my: hearing and back. I have hearing loss and back pain
Additional Symptoms/Diagnoses:
Since being diagnosed with MRKH, I also have:
- bladder issues and I use a catheter 3 times a day
Something/Someone that supports me:
- my physiotherapist
- my catheter
Pranavi
MRKH Type: 2
MRKH has also affected my: spine. I have lumbar scoliosis
Additional Symptoms/Diagnoses:
Since being diagnosed with MRKH, I also have:
- been facing back issues constantly.
Something/Someone that supports me:
- yoga and stretching as much as I can.
Vics
MRKH Type: 2
MRKH has also affected my: kidney(s) - I was born with one kidney, and I have known this since birth!
Additional Diagnoses:
Since being diagnosed with MRKH, I also have:
- Vaginismus and Hypertonic Pelvic Floor
- Overactive Bladder Syndrome
Something/Someone that supports me:
- Emma: my pelvic floor specialist nurse
- Samara: my osteopath